Real Life With a Urostomy
My experiences, lessons, and adjustments after bladder cancer surgery — shared in the hope that something here might help someone else navigating the same path.
Why This Site Exists
This website is exactly what the name suggests — my experience living with a urostomy.
After bladder cancer surgery left me with a stoma and an external pouch, I quickly realized that most of the information available online explains the medical procedure, but very little talks about the day-to-day reality of living with one.
This site shares what that reality has looked like for me.
Everything here comes from personal experience — the things that worked, the things that didn’t, and the small systems I developed along the way to make life easier.
Every person’s medical situation is different, and what works for me may not work for everyone. My hope is simply that somewhere in these stories you might find one or two ideas that help make your own journey a little easier.
Latest Blogs
Explore shared personal experience from real people.
The Top Ten Benefits To Having Urostomy Surgery
When I think back to what was going through my mind when I realized I was going to lose my bladder, there was a lot of fear and anxiety with the unknowns involved. No one told me all of the awesome benefits that would come with it.
Life After Surgery: The Ostomy Adventures
Six weeks after surgery, I was learning the realities of living with a urostomy — including leaks, unexpected situations, and a few lessons along the way.
Just Another Adjustment
A week before bladder removal surgery, I wrote about preparing for life with a urostomy. This post captures my mindset as I stood on the edge of completely unknown territory.